Support Groups
For Chronic Fatigue Syndrome,
Their
Importance And How To Find Them
Like most things in life, we
find great comfort in finding others who share similiar
experiences, and can understand what we are going through.
Having symptoms like chronic pain and fatigue can really wear
you down and knowing that there are others, who really do
understand what you are dealing with, can be wonderful.
Although not everyone with Chronic Fatigue Syndrome (CFS)
experiences exactly the same symptoms, just sharing with others
who can relate to each other is worth the effort of finding and
joining a support group.
Topics Discussed In Groups:
To be able to recognize and if possible avoid
situations that lead to aggravation of CFS
symptoms.
How and Where to seek help from other
people.
Understand how CFS can have an effect on those who are
your support, including members of your family.
How you can find enjoyment in everyday life events,
despite your chronic symptoms.
Part of the uniqueness of group therapy over any other is that
when you are sharing what works and what doesn't work in
regards to therapy; hearing about what you should do can sound
less severe when it comes from someone who truly "walks in your
shoes". An example would be, when a fellow CFS patient tells
you that staying in motion and avoiding bed rest; helps lessen
stiffness; you are more likely to listen and accept this than
perhaps when you hear the same thing from a professional.
Chronic Fatigue Fast Facts
First Doctor Visit For Chronic Fatigue Syndrome And What To Expect
Once you have decided to see a medical professional concerning your symptoms, the best place to start is with your primary care physician. There is no one single test that will tell you that your symptoms are related to Chronic Fatigue Syndrome (CFS). Basically what will happen is your physician will take a full medical history from you. Try to give as much detail as possible regarding your medical history including any stresses, depressions, and illnesses as well as a detailed description of...
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There are some people that find attending support groups can
make them feel more like a victim of the disease due to so many
people gathered together with the same diagnosis. If this
happens, this is ok. You will be able to explore other support
options with your physician. Support Groups are not necessarily
for everyone and this may not be your "cup of tea". Remember,
that there is the right kind of support for everyone. A support
group should lessen your stress, not add to it.
Cost To Attend A Group
Most groups are free to attend, though you may find that there
are some groups that ask for a donation to cover expenses, or
some that may ask for a small membership fee just to cover
refreshments.
A professional who has both experience leading a group and is
also familiar with CFS usually leads support Groups. Most
groups contain a mixture of new members and members who have
attended the group over a long period of time.
Avoid groups where you discover the following:
(Do not let this list scare you.you are not likely to run
across these things in groups that you are referred to by your
physician or other health professional)
There is a promise for a quick or sure cure, especially if they
are promoting a supplement or medication.
The meetings turn out to be "gripe" sessions.
You are asked to stop prescribed treatment and are asked to
take something they want you to take.
You should never be asked for private or sensitive personal
information.
There should never be any demands made that require allegiance
to a cult-like, charismatic leader.
There should never be any fees other than minimal ones to cover
refreshments.
You should never be asked to make any product purchases from
the group.
Use your common sense when searching for the right support
group. Ask questions of the leader and attend a meeting before
making up your mind. Whether or not a support group is what you
decide to do, getting some kind of support should be a part of
your treatment plan.
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