Disability Resource Directory

National and International Support Groups

1. ALS (Lou Gehrig's Disease) Support Groups
   from The ALS Association.
   Woodland Hills, California 91364 USA
   
2. American Self-Help Clearinghouse
   A keyword-searchable database of over 1,100 national, international, model and online self-help support groups for addictions, bereavement, health, mental health, disabilities, abuse, parenting, caregiver concerns and other stressful life situations. Also lists local self-help clearinghouses worldwide, research studies, information on starting face-to-face and online groups, and a registry for persons interested in starting national or international self-help groups.
   
3. Australian Reflex Sympathetic Dystrophy Support Group (RSD)(CRPS)
   
4. CFS/FMS
   Northern Virginia CFS/FMS Support Group. A Directory of Support Groups and Information pertaining to these medical conditions.
   
5. CFIDS/FMS/M.E. Directory
   Canada Support Group Index
   
6. children with DIABETES - Support Groups
   
7. Chronic Fatigue Syndrome
   Support Groups from the Centers for Disease Control and Prevention(CDC).
   
8. Down Syndrome Support Links
   
9. Downs Heart Group
   Support and information relating to heart problems associated with Down's Syndrome.
   
10. Guardian Society
    is a support group for parents who have children who suffer from various motility disorders, like (but not limited to) Hirschsprungs Disease, GERD, and such.
    
11. International Costello Syndrome Support Group
    Costello Syndrome is a very rare genetic disorder with approximately 150 reported cases world wide.
    
12. Irritable Bowel Syndrome (IBS)
    Irritable Bowel Syndrome (IBS) Self Help and Support Group.
    
13. Local ( Riley & Geary County, Kansas ) Support Groups
    
14. Myotonic Dystrophy Support Groups
    Lists support groups for myotonic dystrophy.
    
15. National Association for Parents of the Visually Impaired
    The  NAPVI  Parent Directory Online! is a place where parents, grandparents, guardians and others can list some personal information to provide an online network of support and information.
    
16. New Jersey Self-Help Group Clearinghouse
    Website of the New Jersey Self-Help Group Clearinghouse, a non-profit service of Saint Clare's Health System and funded by the NJ Division of Mental Health Services, that provides information by phone on over 4,500 local self-help groups in New Jersey. Website contains information on services to include training workshops, online newsletter, and contact information for over 170 local mental health groups (including anxiety, depression, bipolar disorder, obsessive-compulsive disorder,eating disorders, families of the mentally ill, dual diagnosis, and more).
    
17. Our-Kids Website
    Devoted to Raising Children with Special Needs. Our-Kids is a support group for parents, caregivers and others who are working with children with physical and/or mental disabilities and delays.
    The Our-Kids list consists of over 800 people representing children of varying diagnosis; everything from indefinite development delays and sensory inegration problems to cerebral palsy, to rare genetic disorders. Over 35 countries are represented on the list.
    
18. Parent to Parent of Georgia
    is a disability organization and parent support group, providing peer support and resource information to parents of children and adults with disabilities in Georgia.
    • Parent to Parent's Newsletter
      is published quarterly. Current and back issues are available online.
      
19. Parent to Parent of New Hampshire
    Learning that your child has special medical needs or a disability can be a traumatic experience.
    As a parent you may have questions and concerns about dealing with your child's needs and your own feelings. You are not alone. We have been there.
    
20. Reflex Sympathetic Dystrophy and Complex Regional Pain UK Support Group
    UK based internet support group for those suffering from RSD/CRPS/Sudecks and related problems.
    Aim is to support each other, give out help, advice, tips, and swap stories and meet in the chat room whenever possible.
    
21. Rest Ministries, Inc. Chronic Illness/Pain Support
    Rest Ministries, Inc. is a non-profit organization dedicated to serving people who live with chronic illness or pain, and their families.
    PO Box 502886; San Diego, California 92150 USA
    
22. Restless Legs Syndrome Foundation
    
23. Riverbend Down Syndrome Parent Support Group
    The Riverbend Down Syndrome Parent Support Group, is a non-profit support group of the Down Syndrome Association of Greater St. Louis, which provides support and information to parents of children with Down syndrome in Southwestern Illinois.
    
24.   New   RSD SUPPORT GROUP
    St. Joseph's Hospital 703 Main Street, Paterson, NJ
    Meets the 4th Tuesday of every month at 7pm in the Barclay Conference Room.
    You need to go to the back of the hospital and park in the vendor parking to get to the Conf Rooms or if you go into the Main Entrance, tell them you are there for a RSD Meeting in the Barclay room. Take the Regan Elevator down to the Basement and follow the signs to the Conf Rooms.
    If you have questions, contact:
    Jacklyn Drake via e-mail (jaci81@optonline.net) Phone 201-704-0963 or
    Lesley Blum via e-mail (aik789@aol.com) Phone 973-779-0658.
    
    "It's nice to have others that know what you are going through and we are a great support system for each other."
    
25. South Cook Multiple Sclerosis Self-Help Group
    This Orland Park Self-Help Group is dedicated to assisting persons with multiple sclerosis, their families and their friends, and to provide the knowledge and support for group members to successfully live with MS and remain vital participants in their communities.
    Orland Park, IL
    
26. supportpath.com
    supportpath.com allows people with health, personal, and relationship issues to share their experiences through Bulletin Boards & Online Chat. It also has a wealth of links to support-related information on the Internet.
    
27. Sydney Based RSD Information Site
    Gives online support and information to people who suffer from reflex sympathetic dystrophy.
    
28. Vestibular Disorder Support Groups
    Support groups for people dealing with vestibular disorders. Some of the groups are part of the Meniere's Network. Some may be linked to other formal networks. They may be led by patients, health professionals, or others. Their size, scope, and agendas vary widely. The most frequently reported symptoms of vestibular disorders are dizziness, unsteadiness or imbalance when walking, vertigo and nausea. These symptoms may be quite mild, lasting minutes, or quite severe, resulting in total disability.
    

[ Top |  Local Support Groups ]